Do you know how much courage it takes to tell 200 strangers it hurts to have sex? Courage.
Continue reading Patient Advocacy & Courage; Becoming a Voice For Many
Tag Archives: spondylitis association of america
I Said “Yes” to Big Pharma
I didn’t want to start this blog. I knew it would get me in trouble. The kind of trouble that puts me in front of a crowd of 200 people from around the world to talk about what it’s like to live with Ankylosing Spondylitis. I’m in trouble. Big time.
I didn’t want to dive into something bigger than I could handle – something that had the potential to amplify my voice into something like…well, like this conference I’m going to in San Francisco the first weekend in November. I’ve really done it now.
When you see me I’m acting
When you see me in public I’m putting on a show. Curtains and…action. Seriously. All the world’s a stage.
Especially when you’re sick. And I mean sick.
Whether you have cancer, ankylosing spondylitis (AS), multiple sclerosis (MS), lyme disease, amyotrophic lateral sclerosis (ALS), fibromyalgia, gastroparesis, vitiligo, rheumatoid arthritis (RA), depression, anxiety, post-traumatic stress syndrome (PTSD), etc etc etc, or a mix of more than one extreme disease, you’ll probably relate to the desire for “normalcy” in this post.
BeingCharis 