There is a lot of misinformation in the ether about Ankylosing Spondylitis and Spondyloarthritis. The following are several official organizations around the world that do work related directly to Spondyloarthrits/Ankylosing Spondylitis education, research, advocacy, awareness, and more. I have found a majority of these organizations and their links through the Ankylosing Spondylitis International Federation website. I have only included organizations that have active links (as of 01/03/2017). If you know of an organization I could add, please comment below.
For starters, this link will take you to an overview of spondyloarthritis, which is the umbrella term for the category of diseases Ankylosing Spondylitis falls under: Spondyloarthritis: A Family of Related Diseases