New! Podcasts:
AiArthritis Voices 360
Patients Weigh In: Why the “Right” Diagnosis Name Matters
Internalized Ableism: Finding Freedom to Participate in Life
#HighRiskCOVID19: Reality Check From the Immunocompromised Community
Beyond the Dollar
Buying A Home In Poverty With Charis Hill
Writing Published Elsewhere:
Medium
Progressives’ Big Ableism Problem
AnkylosingSpondylitis.net
Sleeping In My Partner’s Bathtub Because of AS
Adapting To the Disappearance of Restful Sleep
CreakyJoints
‘The Cripples Will Save You’; A Critical Coronavirus Message from a Disability Activisit
Want to Help Someone #HighRiskCovid19? Try ‘Reverse Trick-or-Treating Your Household Supplies
I Was Tested for Covid-19. I Almost Died While Waiting for the Results
Business Insider
Spondylitis.org
My Time at the American College of Rheumatology Annual Meeting as a Spondyloarthritis (SpA) Patient
Hill Report: 2020 American College of Rheumatology Annual Meeting
Spondylitis Plus magazine
“Burning Man and My Disease” – cover story for spring 2017
Episcopal Church Foundation Vital Practices Blog
This is my body broken, for you
HealthCentral
Learning to Live With My New Wheelchair/Ankylosing Spondylitis and My New Wheelchair
How Potlucks Became My Social Life
11 Possible Complications of Ankylosing Spondylitis
11 Myths of Ankylosing Spondylitis Explained
Finding Home With Chronic Pain at Burning Man
Model With Ankylosing Spondylitis Chases Dreams – All The Way to New York Fashion Week
Just Plane Flying With Ankylosing Spondylitis: Know Before You Go
Just Plane Flying With Ankylosing Spondylitis: On Travel Day
“Representation Matters:” This Scientist With Ankylosing Spondylitis Works On Mars
Former Mommy Blogger Now Writes About Life With Chronic Pain
“Try Guy” Zach Kornfeld Shares His Positive Approach to Living With AS
Do I Need a Specialist for My Ankylosing Spondylitis?
Healthline
Patients Rising
The Patient Side: 14 Ways to Become a Patient Advocate
Arthritis Today Magazine
“Friends Are Not Trophies” – cover story for July-August 2016
#CripTheVote
Returning to the Women’s March in 2018 Committed to Political Change and Accessible Marches
The Mighty
Dear LA Times: Dodgers’ Franklin Gutierrez’s Condition Isn’t Rare
This AS Life
Reclaiming Our Bodies; Sex and Ankylosing Spondylitis
A day with Imagine Dragons’ Dan Reynolds
#Rheumers from San Diego: AS’s finest minds in America’s Finest City
ASWarriors.org
My Struggle With Three Simple Words
Archives:
Pedal Love
Gestalt: my bike does not see the trees – but the forest, yes (a poem)
A tribute to two bicycles and their owners
Thoughts on freedom, control, loving myself, and sharing the ride
Sharing Stories = Letting Your Light Shine
The 10 Things I Learned At the California By Bike Summit 2013
Episcopal Digital Network
AASHE.org
Sustainable Student Leadership Award Essay
Travel Blog