Other Writing

New! Podcasts:

AiArthritis Voices 360

Patients Weigh In: Why the “Right” Diagnosis Name Matters

Internalized Ableism: Finding Freedom to Participate in Life

#HighRiskCOVID19: Reality Check From the Immunocompromised Community

Beyond the Dollar

Buying A Home In Poverty With Charis Hill

Writing Published Elsewhere:


Progressives’ Big Ableism Problem


Sleeping In My Partner’s Bathtub Because of AS

Adapting To the Disappearance of Restful Sleep


‘The Cripples Will Save You’; A Critical Coronavirus Message from a Disability Activisit

‘If You’re Healthy, Your Job Right Now Is to Save the World’; Another Coronavirus Message from a Disability Activist

Want to Help Someone #HighRiskCovid19? Try ‘Reverse Trick-or-Treating Your Household Supplies

I Was Tested for Covid-19. I Almost Died While Waiting for the Results

I Just Found Out That President Biden’s Son Beau Had Ankylosing Spondylitis and It’s Giving Me Major Hope for the Future

Business Insider

I live on disability insurance and was able to buy a house in Sacramento, but most people with disabilities aren’t as lucky


My Time at the American College of Rheumatology Annual Meeting as a Spondyloarthritis (SpA) Patient

The Power of Our Own Stories

Hill Report: 2020 American College of Rheumatology Annual Meeting

Spondylitis Plus magazine

“Burning Man and My Disease” – cover story for spring 2017

Episcopal Church Foundation Vital Practices Blog

This is my body broken, for you


Learning to Live With My New Wheelchair/Ankylosing Spondylitis and My New Wheelchair

How Potlucks Became My Social Life

11 Possible Complications of Ankylosing Spondylitis

11 Myths of Ankylosing Spondylitis Explained

Finding Home With Chronic Pain at Burning Man

Model With Ankylosing Spondylitis Chases Dreams – All The Way to New York Fashion Week

Just Plane Flying With Ankylosing Spondylitis: Know Before You Go

Just Plane Flying With Ankylosing Spondylitis: On Travel Day

“Representation Matters:” This Scientist With Ankylosing Spondylitis Works On Mars

Former Mommy Blogger Now Writes About Life With Chronic Pain

“Try Guy” Zach Kornfeld Shares His Positive Approach to Living With AS

Do I Need a Specialist for My Ankylosing Spondylitis?


Dear Fellow AS Patient

Patients Rising

The Patient Side: 14 Ways to Become a Patient Advocate

Arthritis Today Magazine

“Friends Are Not Trophies” – cover story for July-August 2016

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Returning to the Women’s March in 2018 Committed to Political Change and Accessible Marches

The Mighty

Dear LA Times: Dodgers’ Franklin Gutierrez’s Condition Isn’t Rare

This AS Life

Reclaiming Our Bodies; Sex and Ankylosing Spondylitis

Seize the Day

A day with Imagine Dragons’ Dan Reynolds

#Rheumers from San Diego: AS’s finest minds in America’s Finest City


Chronic Doesn’t Go Away

My Struggle With Three Simple Words


Pedal Love

Gestalt: my bike does not see the trees – but the forest, yes (a poem)

Put a Helmet On It!

A tribute to two bicycles and their owners

Thoughts on freedom, control, loving myself, and sharing the ride

Sharing Stories = Letting Your Light Shine

A Declaration of Love

I Am NOT My Disease

The 10 Things I Learned At the California By Bike Summit 2013

What My Bike Means To Me

Episcopal Digital Network



Sustainable Student Leadership Award Essay

Travel Blog

Travel blog from studying abroad in South Africa

a voice for many

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