Category Archives: chronic pain

Migrating Salmon & heartbeat songs | a Poem For Pain Month

There is a roaring river beneath my skin, glacial ice flowing, collapsing everything in its path

Fish push through veins too small for them, swimming upstream

I feel my heartbeat everywhere

A trembling thud repeated and passed along, firing along corridors of joint and tissue

Durn dunh

Durn dunh

Durn dunh

In my fingers, one by one, a beat – keyboard style, like waves of smooth hypocritical staccato beats traveling from knuckle to knuckle. January March May July … the months with 31 days beat the most blood.

Continue reading Migrating Salmon & heartbeat songs | a Poem For Pain Month

Painstipation, Ever Heard of It?

Salix Pharmaceuticals provided me with a stipend and paid for my travel and accommodations related to the event. However, all opinions are my own.

Poop. Number two. Bowel movement. Stool.

If it isn’t hard enough already to talk about living with my invisible, incurable disease and chronic pain, it’s even more difficult to talk about poop — or lack thereof: constipation caused by opioids, a medication I take to manage my chronic pain.

You’re laughing, right? Because I said poop. And I’m sorry not sorry for all the puns in this post.

When I was invited to attend a recent event to discuss Opioid Induced Constipation (OIC), my first reaction was, “Wait, what? Opioids can cause constipation?” I was shocked. I consider myself a well-informed patient and if even I didn’t know, I realized a majority of my audience probably doesn’t know either.

OIC Definition

At this Salix Pharmaceuticals event, I learned of the word Painstipation, which is known as the constipation caused by opioid pain medication in chronic pain patients, also known as OIC. Dr. Joseph Pergolizzi, Senior Partner and Director of Research of Naples Anesthesia and Pain Associates who spoke at the Salix event says, “Some chronic pain patients may not mention opioid induced constipation with their practitioner, so we need to have a ‘do ask, do tell’ policy. It’s important to realize that it starts with conversation. I like to use the phrase ‘Painstipation.’ These are chronic pain patients who are experiencing constipation due to their opioids.” Continue reading Painstipation, Ever Heard of It?

27 Gifts for Someone with Ankylosing Spondylitis

FYI: if you purchase something through a link in this post I may receive a small commission, but it will not change the amount you pay for the item. Note: links to products sold on Amazon are not (currently) linked to an affiliate program.


While gift-giving is common for special occasions and during the holiday season, people living with Ankylosing Spondylitis (AS) could use a little extra love year-round. Here’s a long list of items I use almost daily (I really have used all these items recently)! The prices I included are as of the date this was written:

Hot or cold? 

1. A heated mattress pad – this is my fall-through-spring bed staple item, and my cats love it too.

2. A moist heat heating pad. My favorite brand is Battle Creek, but be aware that their products get super hot!

3. A simple bean or rice microwave heating pad or sock. You can even make these at home using – you guessed it – a (clean) sock and a couple cups of rice. Please research this before making!

Things to wear

Continue reading 27 Gifts for Someone with Ankylosing Spondylitis

Your Friend Just Got Diagnosed with Ankylosing Spondylitis. What the Heck?

 

First of all, what is Ankylosing Spondylitis (AS)?

Wait, how do you even pronounce it?

Ankylosing Spondylitis (An-kee-low-sing Spon-dih-ly-tuss) is a disease that causes inflammation throughout the body, especially in the spine and low back, and can cause bone spurs to fuse joints together, typically in the spine. As you can imagine, extra bone growing in your body that’s not supposed to be there can be quite painful. Additionally, since AS is systemic it can also damage organs including the eyes, liver, lungs, and more.

AS is generally treated by a specialist doctor called a rheumatologist. The clinical treatment recommended to slow down the progression of AS, as stated in the 2015 AS treatment guidelines published by the American College of Rheumatology, is a biologic drug if non-steroidal anti-inflammatory drugs fail (my understanding is that a combination of therapies is common, both pharmacological and complementary). A biologic is a specialty drug made from living cells (biologically, rather than chemically) that, in short, suppresses the immune system. In ankylosing spondylitis, the body constantly attacks itself, seemingly without a real danger present, which causes inflammation and damage. The biologic drugs slow that reaction but in doing so also decrease the body’s ability to fight infection. You can read more about how autoimmune vs auto-inflammatory diseases work here (hint: AS isn’t proven to be autoimmune).

So now that you know a teeny bit more about AS imagine you are the one who was just diagnosed with it.

Scary, huh?


Congratulations are in order simply because you are reading this blog post. It’s difficult to believe, but I often hear from people whose family and friends shun them for “faking being sick.” These same family and friends often don’t make an effort to learn what their loved one is actually experiencing. So thank goodness you believe your friend and want to learn more.

Continue reading Your Friend Just Got Diagnosed with Ankylosing Spondylitis. What the Heck?