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#sickbody, Advocacy, ankylosing spondylitis, Charis, chronic disease, chronic pain, disability, Patient Advocacy

Patient Advocacy & Courage; Becoming a Voice For Many

November 6, 2015 BeingCharis 6 Comments

Do you know how much courage it takes to tell 200 strangers it hurts to have sex? Courage.

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#Rheumers #sickbody #sponsor American College of Rheumatology ankylosing spondylitis BeingCharis Big Pharma But you don't look sick novartis San Francisco spondylitis association of america This AS Life

a voice for many

About Charis

Unstoppable, award-winning advocate since 2013, Charis is a professionally disabled writer, speaker and model living with Ankylosing Spondylitis (AS), Major Depressive Disorder, Anxiety and Post-Traumatic Stress Disorder. They live with two furry part-Maine Coon cats in a falling-apart house bought while living in extreme poverty. Click the picture to learn more.

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Grateful to have a partner who protests. . Pissed we still have to protest white supremacy and cops murdering black people. . . 1st image by @vicmastr . . #Sacramento #JusticeForGeorgeFloyd #JusticeForTony #JusticeForBreonnaTaylor #BlackLivesMatter #GeorgeFloyd #BlackDisabledLivesMatter #BlackTransLivesMatter #BlackQueerLivesMatter #GeorgeFloydProtests

Y'all like my brand new rollator? I would look more excited about it, except black women, black men, black trans women, black trans men, black disabled women, black disabled men & black queer folx are being murdered before our eyes. . . . Image by @emiltea. . . . #BlackLivesMatter #Disability #BlackTransLivesMatter #BlackDisabledLivesMatter #BlackQueerLivesMatter #JusticeForFloyd #JusticeForTony #JusticeForBreonnaTaylor #JusticeForAhmaud #BeingDisabled #Disabled #Rollator

CN: This post mentions racism & police violence against black people. . . . . . . . . . . . This post is for me. It's not for likes or attention. I am putting it out here because I need to remind myself of this day next year. I don't expect or really even want you to read on, because I'm just going to rant for my own reminder to hold this day empty for George Floyd. This day is perpetually cancelled for me because it was cancelled for him by a white cop murderer. . . This post reeks of my own privilege in my white-appearing body, the fact that I'm allowed to grieve the murder of #GeorgeFloyd while knowing it would never happen to me. . The fact that I can leave my home and know for certain a cop won't suffocate me with his knee. . The fact that I know going for a run won't end in me being lynched for the color of my skin. . . The fact that I can live. And keep breathing today when George Floyd couldn't breathe. . . . I'm grieving, I am in pain, I am angry. I am broken. I went for a run so I wouldn't start drinking to numb the pain. I haven't run in years, but I needed to channel that pain into something that could help my body gain strength to show up for my black siblings who can't leave their homes without knowing the world out there is a death waiting to happen. . . . . Today is cancelled for so many black people whose lives were taken from them by racist white cops. I know wearing this statement t-shirt I got for Burning Man doesn't make an ounce of a difference. But I do hope that my continued fighting for black lives outside of this rant-y post will. . #BlackLivesMatter

A hot day in my romantic space that doubles as a calm meditation space that has yet to be meditated. (Just pre-meditated?) . . . . . #CharisCouture #BeingCharis #Serenity #Sacramento #Outside #SafeAtHome #BackyardSpaces #me

Today's pandemic couture with my love, @emiltea, before putting on my Tyvec suit & respirator for a farmer's market trip. . . I think we're pretty darn adorable. . . . . #PandemicCouture #CovidCouture #ModelCouple #Queers #Queer #Enby #EnbyCouple #Pose #Love #LGBT #LGBTQ

Madge. . . . Madge's healing well (we think) and she's getting into this routine where she licks her collar since she can't lick herself. She loves licking human, too. . . . #Madge #MadgeTheCat #Meow #Shadows #RagdollCat #SpayNeuterYourPets #CatsOfInstagram #CatTongue

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