I Said “Yes” to Big Pharma

I didn’t want to start this blog.  I knew it would get me in trouble.  The kind of trouble that puts me in front of a crowd of 200 people from around the world to talk about what it’s like to live with Ankylosing Spondylitis.  I’m in trouble. Big time.

I didn’t want to dive into something bigger than I could handle – something that had the potential to amplify my voice into something like…well, like this conference I’m going to in San Francisco the first weekend in November. I’ve really done it now.

Continue reading I Said “Yes” to Big Pharma

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Remembering Rachael, Raising Ruth

Rachael died the day before her daughter was due to be born.

But baby Ruth was already over four months old when Rachael died. She was born so early she weighed less than a pound – 0.95 pounds, to be exact. That’s less than the weight of a four-stick package of butter.

Our physical bodies are on loan to us.  They will die. It is our spirit bodies that are unique and will never die.  It is our spirit bodies that fall in love; our physical bodies only transmit it through touch. It is what we leave behind of our spirit bodies, our love, that becomes our legacy. Continue reading Remembering Rachael, Raising Ruth

Come, let us follow the Rt. Rev. Michael B. Curry to Galilee

Clergy of Trinity Cathedral in Sacramento, CA, Summer 2015
Clergy of Trinity Cathedral in Sacramento, CA, Summer 2015

The Episcopal Church is going Jesus on you. And this is no Jesus you’ve ever been hurt by. This is the life-affirming, love-giving Jesus who is everywhere. He’s at Pride, he’s at the bus stop, he’s at Burning Man, he’s in your kitchen. And everywhere he is, he’s giving people hugs and cake. Continue reading Come, let us follow the Rt. Rev. Michael B. Curry to Galilee

Trailblazing Ranger Women and Girls Playing With Boys

This Friday, October 16th, 2015, Major Lisa Jaster, the third woman to make it through the grueling Ranger School, is expected to graduate and walk away with her well-deserved Ranger tab.  I’m no Army woman. I’m no fan of war or the need for a military.  In fact, I’m a complete pacifist.  But that does not keep me from being proud of trailblazers like Major Lisa Jaster, Captain Kristen Griest and 1st Lieutenant Shaye Haver to remind the world that we – women and men – are more alike than we are different and we [should] have equal access and opportunity in the world.

These women, these fantastic rangers, are each “one of the boys” you could say.  Or not. Continue reading Trailblazing Ranger Women and Girls Playing With Boys

When you see me I’m acting

When you see me in public I’m putting on a show. Curtains and…action. Seriously. All the world’s a stage.

Especially when you’re sick. And I mean sick.  Whether you have cancer, ankylosing spondylitis (AS), multiple sclerosis (MS), lyme disease, amyotrophic lateral sclerosis (ALS), fibromyalgia, gastroparesis, vitiligo, rheumatoid arthritis (RA), depression, anxiety, post-traumatic stress syndrome (PTSD), etc etc etc, or a mix of more than one extreme disease, you’ll probably relate to the desire for “normalcy” in this post. Continue reading When you see me I’m acting