Becoming Incurable | Help Make This Chronic Disease Documentary a Reality

Last summer I announced that I was being featured in Becoming Incurable, a film featuring the stories of three people in Sacramento, California, each living with different chronic diseases: Ankylosing Spondylitis, Lyme Disease, Mold Illness, and Dystonia.

In that announcement I said:

Since that day in February when I received Victoria’s (filmmaker/director) email, I have welcomed her into my life with Ankylosing Spondylitis and hidden nothing from view.

I am heartened by Victoria’s passion, curiosity, and talent in videography and visual storytelling. I am humbled by her desire to make this more than a film. She has poured heart and soul into this and I have witnessed her feel deeply and dream big as she has jumped into the deep end with us three professional, chronic survivors.

What I didn’t realize, even when I told all of you that I was in the film, was how big of an impact it would have in the chronic disease community even before the movie itself was ever finished! Becoming Incurable has become much more than a film; it has become a platform empowering people to share their own stories and lives with incurable diseases, largely thanks to the passion and drive of director/filmmaker Victoria.

Becoming Incurable Banner Image
Voices of the Chronically Incurable

Becoming Incurable, which is scheduled for release in 2019, has already been telling short stories of people living with chronic diseases in the USA and abroad in “Inside Incurable Lives” video episodes and audio-digital magazine issues (find the latest issues on Facebook or the film’s website).

This project and platform is timely and crucial considering the reality of so many who live incurable diseases and the rise of diagnoses of chronic diseases. People too often feel alone in their pain, fatigue, and other physical and mental symptoms; and Becoming Incurable seeks to highlight these challenges as well as other barriers sick people face including access to healthcare, treatments, research funding, and awareness.

29314656_2326251487400631_7206441294275543040_o

Most importantly for me, Becoming Incurable de-invisible-izes (I made that up) the invisible aspects of living with incurable diseases. I believe this is a necessary movement to de-stigmatize a topic that has, until recently, been mostly off-limits: lifelong disease & pain.


Becoming Incurable highlights what goes on behind the scenes in real people’s lives. That includes the psychological, social, financial, and physical strain that is felt by so many people who have one or several incurable diagnoses. And I am so pleased to be part of it.

From March 15th through April 14th, 2018 (update: crowdfunding was successfully completed April 14th, but you can still support the film in other ways by following at the bottom of this post), Becoming Incurable is crowdfunding to complete production of the film. Even if you cannot contribute, sign up to follow the campaign (which is FREE!) through Seed & Spark, the crowdfunding host site. If the Becoming Incurable campaign reaches 1000 followers the film will be eligible for additional prizes. *update April 2018: we are fully funded!*

29243744_279983419202223_8896451933875732480_o

Sign up and contribute to the crowdfunding campaign through April 14th, 2018.

Follow Becoming Incurable on Facebook, Twitter, Instagram, and the Website.



If you found this post useful in some way, please consider supporting my work with a $3 tip at ko-fi.com/beingcharis. Your support will help me keep the lights on and add a big smile to my day.

Advertisements

8 thoughts on “Becoming Incurable | Help Make This Chronic Disease Documentary a Reality”

      1. I’ve had a chronic illness for 23 years so I know what a chronic illness is. It took me 20 years to figure out the cause. I never gave up! I would never want anyone to think their labels given to them by medical professionals as becoming incurable. That’s giving up! There are so many ways to get your life back to 100%. Getting away from main stream medical is a must! Becoming incurable Is not reality for me! I’ve seen many success stories of people who were told by MDs there is nothing we can do but give meds to minimize symptoms. Including myself!!! Anyone that is told we don’t know what is causing your symptoms needs to leave those MDs. There is a cause and there is always hope! Never give up!

        Like

      2. Oh I know what Its like to have a chronic illness. My last comment didn’t post. Not sure why. I’ve had a chronic illness for 23 years so I get it! I see Lyme and mold illness mentioned. You can get your life back to 100% from both of those. It took my 20 years and getting away from main stream MDs to find out the cause of my symptoms. I was told we don’t know why you have this and there isn’t a cure you just need drugs to manage symptoms. Completely wrong! I hope everyone else told those things does not give up! There are ways to heal 100%! I wish all these 3 people living with a chronic illness much luck in healing! It’s possible and it happens! Good luck to everyone in this film!

        Like

    1. Thanks for your comment! I find Becoming Incurable to be the most validating two words I’ve ever heard, and I’ve heard similar sentiments from many others in the chronic disease community. It is a film following the journey and exploring the lives of three people who are or have been on the process of doing just that, learning what it means to become incurable, and that speaks truth to so many peoples’ realities. Can’t wait for you to watch it!

      Like

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google+ photo

You are commenting using your Google+ account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

w

Connecting to %s