I Told My Story at the 2018 Women’s March in Sacramento

Below is a video and transcript of the speech I gave at the 2018 Women’s March in Sacramento. The current video may be updated with an official rally video after it is released.


(Video courtesy of Darcy Totten, Activism Articulated)


Sacramento!!!

My name is Charis.

Five years ago I was asked to testify on a bill and I said to the person, “I am nobody, how can you expect me to say anything to convince these lawmakers to choose the right thing?”

She said, “Charis, all you have to do is share your story. Nobody can tell your story for you.”

Sacramento! Can you share your stories? That’s all you have to do.


I’m a former college athlete. I graduated magna cum laude from a women’s college and I paid off my college loans in 6 years. I could do anything!

But.

Then I was diagnosed with Ankylosing Spondylitis. You can’t tell because I’m hiding the pain, but Ankylosing Spondylitis hurts like hell and my body’s working overtime just to survive. I also live with Post Traumatic Stress Disorder, Depression, and Anxiety.

In 2016, I made the hardest decision of my life. I applied for Social Security Disability. Now, two years later, I am still waiting for a decision on my case. For two years I’ve been surviving on savings and occasional financial help. But with Sacramento’s rent rising astronomically and my savings and health in decline, my future is uncertain at best.

And there are millions more struggling harder than me.

A lot of people who apply for disability never receive it. A majority of applications are denied, and last year 10,000 people died waiting.

On another topic, Republicans in Congress seem to think I don’t deserve quality healthcare either. Many of them have said people like me should get a job and pay for it ourselves. What they don’t realize is that I never stopped working! My job is to stay alive, and that’s not easy.

Millions of people who are disabled rely on Medicaid or Medicare, and for me, access to regular treatments through Medicaid is vital for my survival.

Now, Sacramento, I hear Congress is taking a paid nap-time right now, but I still have some messages for them:

1st: People’s lives depend on quicker approvals and fewer denials of Social Security Disability.

2nd: Healthcare for poor and disabled people isn’t something we can just cut out of our national budget!

3rd: We’re people. We deserve to be seen, heard, have a living wage and safe places to live, and a place at the table.

So I have 2 things for you to do, Sacramento:

  1. Include disabled people on your advocacy planning. Don’t just invite us to show up, include us in the planning from the start. I want to thank the organizers of this march for doing everything they could to make this march as inclusive as possible.
  2. Right now, get out your phones and open Twitter. Ready? Tweet:

“This November, #CriptheVote! Vote for politicians who value disability rights. #womensmarchsac”

Done?

Awesome, thank you!


More pictures will be added as I receive them:

 

 



Charis Hill is a writer, speaker, model, and chronic disease advocate in Sacramento, California. Her story with Ankylosing Spondylitis has been featured in dozens of publications and news outlets including the Associated Press, Arthritis Today Magazine, Mother Jones, CNBC, and her blog, BeingCharis.com. Follow her on Twitter @BeingCharisBlog.

 

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3 thoughts on “I Told My Story at the 2018 Women’s March in Sacramento”

  1. Way to go, Charis! We need more of us activist patients out there insisting that Congress include us in the decision-making. I and some other patients are trying to get Congress to outlaw abuse of patients in the healthcare system and provide us more protections and rights in our healthcare; closing loopholes in current law. This petition is going to Health and Human Services Secretary Sylvia Burwell, and we are asking that legislation be introduced and enacted in the 2018 legislative session. Trying to get Bernie Sanders and Elizabeth Warren on this as the lead legislators to deliver this as an official bill! https://www.change.org/p/stop-power-hungry-doctors-from-bullying-gaslighting-and-blacklisting-their-patients

    Feel free to sign and add a personal account to it.

    I’ll tweet your blog post as well!

    In solidarity,

    Pippit

    Like

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