About a year ago I connected with the folks of Self Care Catalysts and downloaded their free app, AS Health Storylines (available on android and Apple products), that helps track medication, symptoms, diet, appointments and more. This, and other apps, has helped me – sometimes I need a reminder to take a certain medication; I also like all this information in one place so I can share it with my doctor and disability attorney.
Recently, Self Care Catalysts has also unveiled The Spondy Project, a paid research opportunity for patients with Ankylosing Spondylitis and other forms of Spondyloarthritis. Participants can receive up to $100 for sharing their experiences through an app for up to four months. Read more below to see why I think you should sign up:
Five reasons BeingCharis thinks it’s a good idea to sign up and participate:
- Remember my last blog post, 14 Ways to Become a Chronic Disease Advocate? Check out #11. Contributing to research is important, and YOUR experience matters.
- You could make $100.
- Self Care Catalysts takes a patient-centered and empowering approach to self-care solutions.
- Did I mention you could make $100?
- You could learn something about your own experiences you didn’t consider before.
Here is more information about The Spondy Project, directly from the site:
“Do you want to be the voice of your community and inform researchers about what it’s really like to live with an invisible disease like Ankylosing Spondylitis (AS) or associated Spondyloarthritis (SpA) diseases?
We are calling everyone with AS or SpA to be part of The Spondy Project. This is a community-based research project to better understand the experiences of people, like you, living with this invisible illness.”
And, by all means, comment below if you have questions.
Small print (ok, figuratively speaking): BeingCharis is solely promoting this opportunity and is not involved in how Self Care Catalysts runs or manages any of their apps or research projects. Please visit their site/contact them for more information about how their stuff works.